KABUL (Pajhwok): People suffering from hemophilia in Kabul say the international community should not link its aid politics because they seriously need the help of global organizations.
Hemophilia is usually an inherited bleeding disorder in which the blood does not clot properly. This can lead to spontaneous bleeding as well as bleeding following injuries or surgery.
Dozens of hemophilia patients held a protest meeting outside the Blood Bank in Kabul on Sunday.
Musa Omarkhil, one of the participants, told Pajhwok they gathered to convey the voice of people suffering from hemophilia to the world community and seek help.
He said his three brothers hemophilia patients and they could not afford their treatment.
He said previously the World Federation of Hemophilia had been providing enough assistance to people with hemophilia in Afghanistan, but now the aid had decreased significantly.
He said the aid had faded away since a year and they could not afford their treatment.
Another person with hemophilia Asadullah told Pajhwok he has been suffering from the disease since birth.
He said hemophilia patients suffer from deficiency of a specific blood factor. He said in the past some aid organizations would help hemophilia patients, but they had now stopped doing so and the patients could not buy medicines from market.
He feared they would become permanently disabled if the international community did not help the patients.
Central Blood Bank head Dr. Mohammad Nasser Sadiq told Pajhwok that children inherited hemophilia disease from their parents.
He said hemophilia was a complex disease and its treatment was to replace the missing blood clotting factor.
He said the factors used in treatment of the disease were not made in Afghanistan and could be obtained in developed countries.
He urged the World Health Organization and the World Federation of Hemophilia to continue helping Afghans patients as they did before.
According to his information, 800 people with hemophilia are registered and the number of such patients in the entire country can be up to 4000 if a general survey is conducted.
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